Tag Archives: hospice

Random bits and pieces.

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We had a frost last night which finally killed off most of my geraniums and that got me thinking about what comes next.

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I’m not quite at 168…

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But my book corner should last me through mid January.

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I wholeheartedly agree Thomas.

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A friend called the other day and said her ex had just entered into hospice care. She asked if I had any more of the small booklets I was given when my mother passed over a decade ago. Written by a hospice nurse they took the mystery out of the physicality of dying and truly helped at a difficult time in my life.

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I had one more set and was happy to share them with her daughter. Nothing about losing a loved one is easy, but knowing what to expect at the end brought me a small measure of comfort.

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Sunset… lighting up the fall foliage across the road.

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Sure was pretty.

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Even with those awful greenhouses blotting the landscape.

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Random selfie, just because.

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Not unexpected, but still sad.

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We visited my husband’s uncle in the hospice last week. He was in good spirits…. laughing and joking with the nurses.

When we visited yesterday? We were met by a nurse who said we weren’t allowed in his room and then ushered into the chapel.

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We were told to wait here for someone to come talk to us.

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We waited and a woman we hardly knew, someone my husband’s uncle called ‘niece’ but wasn’t actually related, came in to inform us the uncle had taken a turn for the worse a few days before and was totally unresponsive. The end being near, his son was flying in that day from Florida and left instructions no visitors were to be allowed.

Needless to say we were beyond shocked.

Barred from seeing him. Barred from saying goodbye.

It was all I could do to stop my husband from storming the beachhead.

Since the son is legally next of kin and has power of attorney, the facility listens to him. There was nothing we could do.

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Except cry.

I did a good bit of that.

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As happy as we could make it.

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My husband’s uncle celebrated his 91rst birthday in hospice last week and we tried to bring a little cheer.

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The nurses are so wonderful at this facility…. they all gathered round, sang happy birthday and brought him a gift.

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They also gave him a nice warm fleece blanket. Suitably decorated for a veterans hospital.

As he was opening our card, I noticed he had a new friend on the bed side table.

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This furry little guy travels from room to room and visits with patients.

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It sounds silly, but I think my husband’s uncle really liked it. And while he has a good steady flow of visitors… I can see this kitty being good company for those who don’t.

❤️

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And the sadness keeps on coming…

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Since we’ve been emotionally overwhelmed and beyond busy with my SIL’s situation over the past month… other things have taken a back seat. And though I hate to admit it, that included visits to my husband’s elderly uncle. We’d been going once a week to visit, bring groceries and run errands but hadn’t done anything other than call in three. And then the other day, we found that his phone had been disconnected.

A visit to his house found it locked up tight, blinds drawn and truck missing.

A few frantic phone calls later….

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We arrived at the V.A. hospice facility.

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A huge campus with a pond and strolling flocks of Canada Geese. And unlike a lot of Veterans Affairs hospitals, a complex with an excellent reputation and amazing care.

It was here that we found my husband’s soon to be 91 year old uncle.

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A recent trip to the emergency room revealed he is riddled with bone cancer and has a mass on his lung.

He won’t be going home.

But honestly? He’s alright.. and has made his peace. He was in good spirits, joking, telling old stories and flirting with the hot and cold running nurses who are catering to his every whim.

This place is amazing.

Private rooms with a fridge, microwave and Bose sound system.

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A large menu. Room service food whenever you want it. An ice cream and dessert cart that goes door to door like the Good Humor truck.

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The high tech bed has Wi-Fi and a USB port.

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With multi colored light reflections on the floor.

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They even hooked up a DVD player and brought him John Wayne movies.

The staff is kind, compassionate and go out of their way to make him as comfortable as possible.

Losing a loved one is never easy, but he’s in a wonderful place and being well looked after. He’s a widower with one son who lives in Florida… so we’re going to do our best to visit as often as we can.

❤️

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Life finds a way.

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Since I dumped a rare personal feelings blog about my SIL on you recently, I thought it only proper to offer an update.

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Unbelievably and against all odds, she’s still at the hospice. Relatively alert, and though weak as a new born kitten, starting to regain her appetite.

I can’t stress how remarkable this is. She was literally on her way out. We saw it, the doctors were waiting for it and yet here we are two weeks later and they say she doesn’t require further hospice care and will be moved to a nursing home soon.

I’d say this is good news but sadly it’s not. She wants to die. She keeps telling everyone we should have let her go. She has completely lost the will to live and takes no joy in anything.

We visit 2-3 times a week and tell her we love her. We bring her favorite foods and try to lighten her mood. I send her a photo of better and happier days every morning. We’ve had long, deep, emotionally draining talks, but I’m at my wits end how to help.

Maybe I can’t.

Maybe I should just stop trying.

I hate to say it, but she’s so sad and miserable maybe it would have been better if she had just slipped away.

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Hospice trees.

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If you’ve ever visited a hospice house, and I hope you haven’t because the sadness can be overwhelming, you’ll know that extra care is taken in the decoration. There are usually multiple rooms with comfortable furniture, soothing colors and thoughtful artwork.

The hospice in which my SIL currently resides has a thing for trees.

I suppose it’s a tree of life theme…which considering the circumstances seems appropriate. There’s a lovely quilt which greets you upon entry.

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And a beautiful stained glass door to a private room for grieving families.

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There’s no real reason for my posting this, we’ve just been spending a lot of time here so I thought I’d share.

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Dark thoughts.

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Warning – I’m going off the rails of my usual blog fluff here. It’s been that kind of day.

Not sure why I feel I need to post this, perhaps the anniversary of my mother’s death is bothering me more than I realized, but here goes.

I read a series of novels written by Rob Hart recently…

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It was a good romp, but in almost every book there was a section dealing with this topic:

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They say you write what you know, and this author nailed it.

If you’ve never seen a dead body…. and I mean right after death, not processed by a funeral home…. I’m glad. I wish I hadn’t, because what he says is true.

My mother passed in a hospice. She was only there for five days and it was blessedly quick as deaths by cancer go. I was at her side every day, all day and into the night. It was horribly sad and utterly exhausting. I did it alone for the first four days but on the fifth, my husband insisted on coming. To be honest I didn’t want him there. He doesn’t wait well or patiently, and when you’re sitting bedside vigil that’s really all there is to do. My mother was heavily medicated and thankfully free of pain, but she was also mostly unconscious. He tried, but only made it until 5:00pm and then convinced me to leave for the night. She died an hour later. I’ll never forgive myself for not being there, but that’s not the point of this depressing post.

The point is that the author was correct. When I returned to say goodbye and gather my mother’s things a mere hour after she passed, the difference was startling. I don’t know what I was expecting, hers was the only recently deceased body I’d ever seen… but it was indeed just that. A body. Sunken in on itself and completely empty. Everything that was mother had vanished. In a perverse way, it made the final goodbye easier. She was well and truly gone, spiritually and physically.

It’s definitely not like the movies, neither serene nor beautiful.

Just empty.

💔

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Going out on a limb… part 6.

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This will be the last  I never knew River was such a loon unexplained experienced post. Strange things happen, and sometimes you have to blog about them. Which is what I did after my mother passed…. and now again because  Swinged Cat  asked me.

Weird event #6.

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Wow.

Added: Wednesday, July 9th 2014 at 8:54am by rivergirl

I have one more amazing experience to share with you, and for me…this was the most meaningful.

As I’ve said before, the people who work and volunteer at hospices are angels in my eyes. A more compassionate, caring set of individuals you’ll never meet. They were there for me at the worst time of my life…. even when I didn’t think I needed them. They walked me through the process of death and held my hand. Literally and figuratively. They offered a shoulder to cry on and a hug when words weren’t nearly enough. They shared their stories of helping others through difficult times and it ended up helping me.

One woman told me of a patient who had terminal prostate cancer. He was given 3 months to live and was surrounded by his large, loving, Italian family at all times. They came in rotating shifts, cooked meals, read books and played cards. One afternoon while his favorite grand daughter was visiting he told her he was a little tired and wanted to take a nap. She said, “Okay Gramps. But we’ll be right outside when you need us because we’re not leaving you for a minute.” 10 minutes later, forgetting her purse in his room, she snuck back in quietly and found that he was gone.

He needed to spare them the pain of his passing and chose his time.

Make of that what you will.

When you’re sitting in the hospice rooms… there are books, pamphlets and literature on dying scattered everywhere. They’re meant to be helpful, but for days I couldn’t bring myself to read them. Denial is a wonderful thing.

But as time wore on and things got progressively worse, I picked one up.

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It was written by a nurse who has witnessed numerous deaths in her career. And as hard as it was to read…it was also strangely fascinating. Because I learned that it’s a very defined process, death. No matter what your disease or illness….you will die in clearly recognizable steps.

Reading about the months prior to death I realized my mother had been showing the signs. She’d given up reading, which she loved. She’d given up the New York Times crossword puzzle, which she whipped thru in pen. Her appetite had gone from small to non existent. Her sleeping patterns had changed. These are all part of the process….the pulling away from life.

So I sat, I waited, I cried.

And then it happened. It was an afternoon when a social worker had come to talk with me. At this point my mother had been completely out of it for almost a week. You couldn’t wake her and she didn’t speak.

The social worker had gotten up and walked around the room, looking at all the photos I’d brought. We stood on opposite sides of my mother’s bed and spoke of my father and the strange experiences I related here earlier. I had tears rolling down my face when I told her I knew my dad was waiting for my mom. We turned, made our way to the door…. and then? My mother woke up.

Her eyes were as clear as day… and she found me across the room. I rushed to her side, leaned over her bed and held her hand. I told her I loved her. She looked like she was trying to say something…. but couldn’t. Her breathing became labored.  I leaned closer, kissed her and told it her was okay. That it was her time…and that I would be alright. I told her she would be with dad again soon.

I told her he’d been waiting for her a long time and it was okay to go. I told her he was right there with us.

And then the strangest thing happened. She turned her head, reached out an arm and looked right past me….in every sense of the word. Her eyes went completely glassy. Like a curtain had been drawn. Her breathing calmed, she smiled…and I knew. She’d found him.

She closed her eyes and went back to sleep, but I knew the best part of her was already gone. I’m sitting here with a lump in my throat and tears splashing the keyboard, but I tell you at that moment….I felt such an overwhelming sense of peace.

And grace.

I kept a bedside vigil for many more hours. And reread a passage in the book about what happens when death is near…

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Well, I recognized it…. and it was amazing.

She died later that night. A half an hour after I’d left.

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Going out on a limb ….part 5.

I’m just going to keep putting these out here until I run out. If you’re reading them and seeing me differently, so be it. I’m finding it quite cathartic…. and as Bon Jovi says, It’s My Life.

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Weird experience #5, another from my days in the hospice with my  late mother.

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The Crash.

Added: Wednesday, July 9th 2014 at 5:25am by rivergirl

As I said before, I brought a lot of pictures to my mothers hospice room. I hung them on the walls, taped them to the nightstand and tucked them in the tv screen. I wanted to surround her with love and happy memories.

There were many of me and my husband, and our pets and special times we had shared with my mother….

The nurses and staff loved it. They told me it lets them meet their patients in a different way, which considering the never ending sadness they deal with… I thought was very touching.

Most of the pictures were mine, but there were 3 framed photographs that had hung on my mother’s walls for 50 years… so I brought them too.

Here they are:

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Momma & her father

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My mother and her father on Jones Beach.

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My mother and father on their wedding day at the Stork Club.

And this one:

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A very old photo of my mother, in her 20’s, and her first love… Frank.

He was much older and very wealthy. He introduced a young, naive girl born to Austrian immigrant parents who lived in a cold water tenement flat…. to a world of art, culture and high society. They were together for many years, but never married. In 1957 he broke it off and introduced her to a junior partner in his firm….my father. They were married a year later.

I grew up knowing all about Frank. It was no secret she loved him and it in no way diminished the love she felt for my father. First love is first love. It never bothered me.

Now fast forward 50 odd years and her daughter is sitting alone with her in a hospice room waiting for the end. I cried. All day, all night, on and off for days.

During the first afternoon, I was sitting on the rock hard couch thinking about her life, my life and everything in between. I thought about my dad. About how much he loved her and what a good marriage they had.

And then I heard a crash.

The picture of my mom and Frank had fallen off the wall.  It fell face down on the floor and the glass was smashed to bits.

No one had slammed a door, no one had knocked the wall from the next room. There was no seismic shock or tremor that rattled the building. No airplane flew too low and shook the windows. It just crashed.While all the other pictures stayed right where they were.

Apparently while my mother loving Frank didn’t bother me….it clearly bothered my dad. And he told me so in no uncertain terms.

The photo stayed face down on a side table until I brought it home after she passed.

Call it coincidence if you want….

But I know better.

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Going out on a limb…. part 4.

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What is it they say? In for a penny, in for a pound. If you read  this blog I wrote a week or so ago about a strange incident with my father’s antique clock…. and if you didn’t think I was a total nutcase, please continue and blame Swinged Cat .

He asked me to share my weird experiences a while back and that means telling stories from one of the worst times in my life, the death of my mother. So here’s another of the odd moments in my life I can’t explain.

Tick Tock….

Added: Tuesday, July 8th 2014 at 4:40am by rivergirl

As horrible as the passing of my mother was, there were a few moments I will treasure….for very different reasons. And if you don’t mind, I’d like to share them here.

When we moved her from the hospital to hospice, she was in pain…but awake and relatively alert. It was a lovely place and I had visions of spending time with her in the gardens listening to the birds…

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Sadly, that wasn’t to be as the cancer was too far advanced. Her decline was so rapid, strong medication was required.

After the first night of listening to her cry in pain, I gave the okay for maximum morphine. She rested more easily, but was so heavily doped up she was unaware of her surroundings. The gardens and peaceful sculptures turning gently in the breeze were more for me… and this lonely bench near the woods became my salvation when the sadness was too heavy to bear.

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I went to her room the next morning loaded with flowers, framed photographs and personal items to brighten her space. But again…. she was unaware.

I stroked her brow, held her hand, and told her I loved her.

Nothing.

In the 5 days she was there, she only spoke once.

“Whose clock is that? I hear ticking.”

I was confused, as there were no clocks in the room. It meant nothing to me at the time. Just the gibberish of a heavily morphined mind.

Or was it?

Those of you who know me, know I am not a religious person. The hypocrisy of the modern church makes me cringe. And when the hospice staff asked me if I wanted a priest to sit with me, I said no. The thought of the black crow of death hovering over me spilling platitudes did not give me the least bit of solace.

So imagine my surprise when a quiet, unassuming lesbian chaplain became my confident during our stay. She listened, she consoled… she was there. We spoke of many things… least of all religion. I ended up spilling my entire history with my mother to her and felt a giant weight lift from my shoulders. They say that the right people come into your life at the right times…. that statement doesn’t seem so trite to me now.

She told me she believed that everyone has someone who helps them pass over. And it eased my mind to think that my father was waiting for my mother at the end of her journey.

She asked me if my mother had spoken and I related that one meaningless phrase.

Her eyes got wide, she bowed her head and then just stared at me. I couldn’t figure out what I was missing…. until she reminded me of the story I had told her the day before. The one about my father’s broken clock ticking after 29 years of silence.

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Make of it what you will…. but that lovely little woman held my hand and said she knew it was my father’s way of saying he was there. Waiting.

Tick, tock.

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